
1996
The
First symptoms. The years of ignorance.
It all begun in 1996. Even though the first symptoms were really
awkward, I paid no attention. Never did I believe that serious illnesses
had to do with me. To be honest I was totally unaware of what MS
was. What could cause, even less what was about to experience…and
the story begins.
I felt my hearing fade on my left side. Doctors said I should avoid
loud noise, even music (!) and they ensured me that I would be okay.
Indeed, in a few days I was okay. The second symptom after a few
months really caught my attention. On the left side again, my eyesight
went blur. It was like I saw the world through a blurry glass. The
oculist claimed I should use collyrium. I did and the symptom vanished
one week later. So far so good. All these seemed quite accidental
at first and it took years in order to put the facts together.
In a very short time things got worse. I couldn’t anymore
pretend that nothing was going on. Fatigue and dizziness were basic
characteristics in daily basis. The feeling of pins and needles
appeared on my left leg and then on my left hand. My steps weren’t
stable and looked uncertain. The last doctor I visited before I
enter the “great adventure” was a pathologist. He immediately
informed me that I should visit a neurologist and that this was
a neurological problem.
Hospital
treatment.
I spent 15 days in the neurological clinic having the most thorough
examinations (encephalon and backbone tomographies, puncture, blood
and urine analysis, encephalogram etc). I was diagnosed with “probable
MS symptoms” ( probable damage to the myelin structure) in
August. The main problem was detected in two spots of my backbone
between some vertebras. I began a cortisone treatment, the soonest
the examinations completed. One intramuscular injection per day
for about 5 days. I started feeling much better and I thought “this
was it”. I’m going home soon.
If only I knew this was just the beginning. If only I knew cortisone
was a temporary way to confront with the problem. Until it comes
back in a much more aggressive way.
No one informed me what this was all about. Of course they knew.
The word “probable” in the diagnose proved to have a
total different meaning. General information about a “nerve
disease” was the only answer.
What caused all this trouble? Should I worry about the future?
What should I avoid? You tell me… Doctors seemed pondering
and optimistic at the same time because I did well with cortisone.
They just kept reassuring me that anxiety wasn’t good for
me which was correct, not to worry about what is happening around
me very much.
I returned home expecting to continue my life normally trying to
encourage my body and mind into wellbeing.
1997
New misfortunes.
The doctor’s advice was to continue medrol pills for some
months until I quit. Day by day I lost my strength. New symptoms
came along such as tremulousness and limping on my left leg. Fatigue
became worse. I felt both my legs heavy. I couldn’t get out
of the house. My activities diminished. I felt dizzy when I was
reading a book or when I tried to write. But I never lost hope.
I said to myself cortisone was the solution to my new problems.
If I was helped the first time why shouldn’t I be again? Unfortunately
I hadn’t taken into consideration the wise statement “Phenomena
can be deceptive”.
New medical attendance but… no results!
It was the second time I visited the same clinic. I went to my
doctor holding my father this time not being able to walk by myself.
He was “surprised” and told me I should get new treatment.
I stayed for another 15 – 20 days. Cortisone injections proved
to be worthless. Things were getting worse and my movements became
really heavy. The new “magical” medicine which fired
up my hope was “immuran”. An immunosuppressive substance.
It was possible to use it for months, maybe years.
There were moments I couldn’t believe what was happening.
I must be dreaming. This could not be happening to me. I was strong,
I learned from my mistakes in life, I became more mature, I learned
to appreciate life, not to take things for granted. Why? What went
wrong?
The war
between medicines.
Many new true friends came to my life. Most of them patients. All
this painful experiences I was thinking… During my stay, and
while I was discussing with several people I heard for the first
time about “interferon”. That this was the cure. I saw
people using it for a long time and looked symptom free. It wasn’t
true. 99% of them were still suffering and became even worse. I
had heard so much about interferon that I was nearly convinced that
doctors were acting absurd that hadn’t told me anything about
it. When I kindly asked them, I was told it was early for such a
confrontation and as time went by a whole new world was revealed.
Starting to suspect the big game.
Until then every thought that crossed my mind was pure. I couldn’t
imagine the big game for profits. I heard about situations which
some doctors gave bonus to certain medicines not incidentally. They
followed strictly protocols. Protocols multinationals had composed.
Everything else was tricky. I realized clearly that medicines were
for commercial use on behalf of the companies and their salesman:
the doctors! Of course not every doctor is aware of the “game”.
He or she may be well – minded even though he or she participates
to the “game”. I didn’t want to believe it. The
“battle of medicines”. Of course today I’m sure
there are huge economic interest for drug companies whether their
products will be sold or not and they don’t hesitate to prevent
the development of scientific research around serious illnesses
because they feel they are economically threatened. So “simple”.
The last day of the treatment arrived. I was really sad not only
because I had reached the worst point of my disease until then but
because of the society I was bound to live. I had no idea how I
was going to deal with the situation. My parents where worried to
death and for a moment I was really scared. I felt completely isolated
and sure that I should strongly believe in my self in order to recover.
At last…time
to smile.
I was on the verge of going to England, to find a better luck.
I had to try it. Besides, there were some relatives there. My parents
wanted it more. Everything was ready but a sudden information, from
a person I trusted, canceled the imminent travel. There was a doctor
in Greece specialized on MS. His method was different and really
promising with unbelievable results as everyone claimed. It was
difficult to believe that there was something else, something more.
Why wasn’t I being told? Other doctors weren’t aware
of his existence? If he is so good as they say why they do not use
his method? I was suspicious but I had to try it. Here, in my country.
The thought I had to go away filled me with anxiety.
Finally I visited him. He saw my medical history and after a few
talks he reassured me that I would be able to walk normally within
two months! He is a fine scientist and above all a really nice and
pleasant man.
The new medicines were “mitoxandrone” and some others
for the tremulousness. Another immunotherapy had just begun. Indeed
within two months I was not only walking but I was running as well!
Even my doctor couldn’t believe his eyes. Things turned out
beyond every imagination. The next years I had the opportunity to
live my life like anyone else. Study, make a relationship, travel,
enjoy life.
1997
– 2002 Carefree years.
During these years symptoms of Multiple Sclerosis were unknown and
this is not an exaggeration. Facts of everyday life proved it. All
these time I was living in full activity. I studied and finally
graduated from the polytechnic school. I drove my bike to the university
in daily basis, I was walking long distances without a problem,
I traveled etc
My doctor claimed I had almost overcame my illness and I wouldn’t
have any problem for the next years even though I had a heavy schedule
in my life. At the same time he warned me of possible unknown imminent
dangers. He helped me understand the connection between MS and every
day life better. There were things I had never heard since then.
Hot weather weakened the immune system. Same with cold days. I should
avoid fatigue and generally lead a steady life. Eat normally, sleep
normally. Try to keep my strength for the next time. Continue my
treatment with coherence. I did that, at first, very often and gradually
in monthly basis. I changed course a few times and I used new medicines
as well. Everything turned out well except one detail…
2002
– 2005
MS
comes back!
From what I can remember, these years where decisive. My condition
begun to deteriorate extremely slow. So slow I wasn’t able
to realize it. Same old story haunted me again. I must admit I didn’t
stay alerted all this time. There were periods were I wasn’t
very careful but I think it was normal. I was only 20 years old
and very thirsty to enjoy youth. Besides, according to my doctor’s
optimism, it was very difficult to explain what was going on.
Fatigue came over me again and I was extremely constipated and
I had urination problems again. There had been many times I hadn’t
visited the toilet for 5 – 6 days! I had very often sleeping
problems. I woke up one or two times during the night or I couldn’t
sleep. My body energy was fading again. My activities were lessened.
I felt like I was going back. My doctor could not give me answers
anymore. Medicines were the only recipe until tremulousness and
balance were restored.
2006
10 years for the truth to be revealed.
Things got worse. I took a serum per day for some months. This
made me really sick. My doctor said I should continue until I was
okay but this seemed so far away…I wasn’t in the mood
of doing nothing. I felt very tired. Days were passing by and I
wasn’t productive. All the symptoms were getting worse. I
took weight because of the quantity of medicines and apart from
that I was prone to diseases owing to immunosuppressive treatment.
My social life was directly affected. Relationships, friendships,
everything.
It was time to take into serious consideration a conversation I
had with a friend of mine about a nutritionist. I had promised myself
to visit him because I heard several stories concerning my problem.
It took some time until my final decision. I was encouraged by the
fact that this treatment had nothing to do with medicines but just
the foods you eat and vitamins. I read a relevant book. The decision
wasn’t easy. After 10 years of medical attendance. I was challenged
by a new method. A new, but totally natural treatment. What if I
was wrong? What if I lost valuable time? I had no other options.
I should give it a shot.
Finally I took the great step. It’s been 5 months since I
visited him. It’s been 5 months since I discovered a whole
new world round my problem. 5 months are already enough to change
my life again. 5 months are more than enough to convince me I made
the right choice. Maybe the only real choice. To convince me that
nothing has ended, on the contrary, everything starts now. This
website is basically dedicated to the role of Alternative Therapies
(vitamins, nutrition, homeopathy etc) to Multiple Sclerosis from
my point of view. It also contains a plethora of advises concerning
a healthy life, which you may find useful in order to stand up to
MS whether it concerns you, a relative or a friend of yours. I hope
with all my heart, you’ll find it helpful.
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